Ten years ago today I woke up at 4am after a few hours of sleep and started getting ready for my wedding. My sister woke up and did my hair (beautifully), and I slowly did my makeup. I drove to the temple in Bellevue with my parents and sang the Primary song "I Love To See The Temple" at the top of my lungs.
Today, a decade later, I woke up at 4am after a few hours of sleep and started getting ready for work. I nursed Rosie after taking a shower, quickly did my makeup and brushed by teeth while I dried my hair. There is no wedding to look forward to, but today I am infinitely happier then I was on April 6, 2001.
A decade has brought about much change for Tom and me. Trips across the world, two apartments, one house, too many horribly painful goodbyes, countless wonderful friends, three children, one life-changing diagnosis, but most of all it has brought us closer then ever. I'd be lying if I said the last ten years were all smiles and rainbows. The last few years in particular have been especially hard, but there came a point when we both, individually, decided that our trials would make us stronger, not tear us apart. That being said, a decade has also brought us so much joy. For our anniversary today, I wanted to share with all who read this what a wonderful man Tom is.
Tom is the most giving, selfless person you will ever meet. Most people have no idea how hard he works and all that he does for his family, his church, his friends - because he is also humble. He is not one to brag about his accomplishments, his goodwill or charity, he simply does what needs to be done because he wants to help, and he expects nothing in return. Since the day Rosie was born, Tom has gotten up and done breakfast for Harper and Nora nearly every single morning. On the days that I work he manages to lovingly get three little girls ready for the day and get himself showered and dressed by 9am. I tell you, that is far better then I can do!! Tom cares genuinely and deeply for the people he serves in our church. As Elder's Quorum President he spent many sleepless nights worrying and praying for families in need. He did this alone, as he is also extremely respectful of other's privacy, and never once spoke to me about any of the hardships he was dealing with. As Young Men's President he is passionately dedicated to teaching the teenage boys in our ward how to be men. I have no doubt in my mind that those young men will be better missionaries, employees, and husbands because of Tom's example.
Tom is STUBBORN. Not quite as stubborn as I am, but very close! When he was in elementary school he started wrestling, and his coach pretty much told him he was no good and wouldn't go anywhere with it. I don't know if the coach was simply a jackass, or if he knew Tom really well, because all that did was push him. In high school he helped his team go undefeated, wrestled in the state championships twice, and his senior year he placed first in his weight class at state. Tell Tom he can't do something and not only will he do it, he will do it better then anyone else has ever done it before.
Tom is a wonderful cook, and I like to joke that he is more of a housewife then I am. Every Saturday morning he comes up with a new breakfast menu (peanut butter stuffed French toast, Belgian waffles made from scratch, homemade cinnamon syrup, etc.), and he usually makes it while watching all three kids and letting me sleep in. For the last three summers he has canned peaches, pears, green beans, tomatoes, homemade spaghetti sauce, pizza sauce, and chili starter, homemade jams and freezers jams of all varieties (strawberry freezer is my favorite), 5 different kinds of salsa, homemade tomato soup, apple juice, grape juice, apple pie filling, zuchini relish, applesauce, apple butter, apple chutney, and even more that I can't think of off the top of my head. And, since for the last three summers I have either been pregnant or up all night taking care of a screaming baby, Tom has done 90% of this by himself. Granted our kitchen has also been a giant disaster of apple goo and boxes of cans....but have you TASTED his jalapeno jelly??
Tom is fearless. I am seriously in awe of this at times. Not only would he do anything physically (jump out of a plane, bungee jump, etc.), but he also has no fear when it comes to people. He could walk up to anybody and say anything! Thankfully he also has a lot of self control and he very rarely says anything rude or obnoxious (which I am also in awe of). The funny part is that even when he IS rude, he does it with a smile and totally gets away with it. It's hilarious.
Tom isn't perfect, but he is perfect for me. He's taught me to be patient and to finish what I start. He helps me calm down when I freak out over what I later realize is nothing. He pushes me to go out and be social when I just want to sit at home and veg, which has helped me foster many cherished friendships that I likely wouldn't have had. He helps me keep things in perspective until I realize that no matter what happens, everything will be OK because I still have him.
I love you so much, Tom. Happy anniversary!
Wednesday, April 6, 2011
A Decade
Posted by Jennette at 10:30 AM 4 comments
Tuesday, February 8, 2011
Colonoscopies
Yesterday Harper and Nora both had colonoscopies - a routine (albeit uncomfortable) procedure for most adults, but a very serious and potentially dangerous procedure for two little toddlers. Thankfully Nora is much bigger then she was at her last one (I realized yesterday that she was smaller then Rosie, a 4 month old baby), so it wasn't as traumatic for her this time. As for adults, the prep is the worst part for the kiddos. With Harper it was easy to explain to her that the doctor needs to look inside her tummy, so it needs to be empty. She wasn't exactly happy about not eating for 24 hours, but she understood. Nora, on the other hand, was a nightmare. The girl eats non-stop on any normal day, and has figured out how to open the door to the pantry, so trying to keep food away from her was a challenge - a very sad challenge. She definitely did not understand why we were starving her.
Posted by Jennette at 8:22 AM 0 comments
Monday, January 24, 2011
Any Given Day

Posted by Jennette at 6:27 PM 4 comments
Friday, January 7, 2011
Looking Forward
I'm a little late in blogging about the new year, but better late then never I guess. And since part of my New Year's resolution is to just do my best and not feel guilty about the rest, I'm just fine with being a week late.
Posted by Jennette at 5:23 PM 0 comments
Sunday, December 12, 2010
Update
Part of me wants to delete the last post, but I know I shouldn't. We all have moments of weakness, and if nothing else I hope this blog is at least real.
Posted by Jennette at 2:16 PM 0 comments
Tuesday, December 7, 2010
Selfishness
This post is going to seem really selfish. I'm just warning you in advance. Sometimes you just have to get it off your chest and then move on.
Posted by Jennette at 8:23 PM 2 comments
Wednesday, November 3, 2010
Magical Uterus and a Crohn's Update.

Posted by Jennette at 4:25 PM 2 comments
Tuesday, June 1, 2010
Things You Forget
For some reason that I can only imagine has something to do with sustaining our human race, you forget about how much pregnancy really sucks. Yes you remember getting huge, you remember a vague sense of uncomfortableness, some sleepless nights, etc., but you do NOT remember the specifics, all of the many, many little "joys" of pre-natal-hood.
For example, how to put on shoes. For many, a simple task. For those past their 5th month (especially on the 3rd pregnancy), not so much. This morning I went to put my shoes on and I apparently grew quite significantly overnight because it was rather difficult. I had to sit there for a minute and try to remember how I did it (only 15 months ago, mind you) with my other pregnancies. I suppose that is the one good thing about being preggers during the summer - flip flops are easy to put on no matter how enormous I get. Not that the weather has been anywhere near dry or warm enough for flip flops here in the Seattle area, but I'm assuming that at some point during the next 4 months it will be. Anyway, you kind of have to bend your legs like you're sitting cross-legged and shove your shoes on that way. I also recall making Tom zip up my boots when I was pregnant with Nora - although how I actually got them on in order for him to zip them is another matter, and one that I have completely blocked out.
There are also the Braxton Hicks contractions. Apparently these suckers start earlier and earlier with each pregnancy because I've been going strong with these bad boys since week 13. Yes I remember having them with Harper and Nora, but I do not remember them being so freaking uncomfortable. I feel like I need to have a little sit-down with my uterus: "Excuse me - I appreciate the fact that you are carrying my baby and that you are preparing for an intense day of labor some 4 odd months down the road, but really - I have better things to do then practice labor. Also, you've done this twice before, you know the routine. Give me a break."
The arm fat. I ask you, is it really necessary to gain 5lbs in each arm to deliver a baby?? At least when I was pregnant with Nora I could hide them under long-sleeved shirts and sweaters since it was winter, but unless I want to drown in my own sweat and/or die of heat stroke, that isn't going to happen this summer. I will have to show off the lovely arm jiggle every time I try to wave my kids over, or fix my hair, or you know...move...at all.
The stronger-than-any-other-force-known-to-man-cravings. It's certainly not something I am proud to admit, but when I was pregnant with Harper I couldn't drive by a McDonald's without getting a quarter pounder with cheese, and I had the thighs to prove it. This time I think I'm doing slightly better since I'm craving more fruit and veggies, but holy crap, I feel like I will actually die if I don't eat it right now. I was craving a good taco salad at work one day, but the closest good one is over in Westlake and I had a ton of work to do. I knew it wasn't going to be possible to get away and I actually started crying right there in my office. Then I felt like such an idiot for crying about food that I started crying even harder.
Which brings me to my next point - the completely out of control emotions. Not only have I cried about taco salad, but there was also the dead squirrel at the train station, the time I couldn't put my regular pants on, the House season finale (and, ok, every other House episode). And of course the things that would make a normal non-hormonal person emotional that pretty much turned me into a total lunatic - the death of a friend's husband, my sister's wedding, my friends' sick baby boy, my own daughters' fight with Crohn's. Really it just seems like crying is the response to pretty much anything. Sad? Cry. Happy? Cry. Angry? Cry while punching pillow.
And lastly, because I am being reminded this very second as I type, the weird positions the baby gets into while in utero. I'm remembering that Nora used to like one side more then the other, and it seems as though this baby is also starting that trend. Right now she is squeezed into my right side, so there is a huge, hard lump sticking out on the right side of my tummy, and just mush on the left side. It looks as insane as it sounds, and it is not comfortable in the least, but it is kind of funny to imagine the baby trying to get comfortable. "If I just curl my legs up like this....and then put my head over here....yeah...that's good...that'll do for the next month or so."
I'm sure I will be reminded of many more wonders as the months progress!
Posted by Jennette at 3:19 PM 2 comments
Thursday, May 13, 2010
Sisters
Posted by Jennette at 8:41 PM 4 comments
Monday, May 10, 2010
Crappy Mother's Day To You, Too
It seems my Mother's Days are destined to be filled with crap. Not the metaphorical crap, as in "I had a crappy day," kind of way, but the literal, "There is crap all over me and my house and I have to clean it up and possibly go puke" kind of way.
Last year there was the Harper diarrhea, the dog eating the diarrhea diapers and spreading them throughout the house, then the dog throwing up the diarrhea diapers, again spreading it throughout the house (AFTER I had cleaned, sanitized and, when possible, bleached everything in my house). It seemed like there was a lot of poo the first time around when it actually came out of Harper, but it exponentially multiplied by the third time around.
This year, the day before Mother's Day, I cleaned up every type of bodily fluid imaginable. Over, and over, and over again. And each time I naively thought to myself (and once even said out loud, to no on in particular), "This HAS to be the last time for today...."
It started out as a really great day. Friday night Harper had her first sleepover at her cuzzies' house, so Nora and I had a leisurely morning, a yummy breakfast, and a fun Target shopping trip. When I went to my brother's to pick up Harper, Nora immediately went for what my mother calls the "Bubble Car." It's one of those plastic cars with the big bubbly looking top that you use your feet to make go, Fred Flinstone style. It was impossible to get her out of that thing, so when she had a dirty diaper I had to drag her out and forcefully hold her down while I took it off and wiped. In the 4 seconds it took me to let go of her and reach into my diaper bag for a clean diaper, she was back in the bubble car, sans diaper. I walked over, picked her up, laid her on the floor to put her new diaper on, and wondered what all that brown stuff all over the carpet was. It kind of looked like poop. Oh. It was poop. Nora has pooped in the bubble car, walked in it, got it all over me, and all over the carpet. I felt terrible, but of course Heather was a sweetheart and ran over to help me clean up.
After everything was clean I decided it was probably time to go, so I packed everyone up and headed over to my parents for an uneventful (read: no poop) afternoon, then headed home for dinner. This is when the real fun started. Harper fell asleep on the way home, and when we got home and I picked her up out of her car seat she peed all over me (still asleep). She's been in panties for over a month, but I guess the urge was too strong while she was sleeping. It woke her up, or maybe my screaming did, I got her in the house, washed up and clean, dry clothes on.
About 20 minutes after we got home I heard this weird noise coming from the hallway, so I went to investigate. For those of you who don't know our dog Scout, he is a little different. We love him, but high maintenance and high energy doesn't even begin to describe this dog. Like most Viszlas he has a touchy stomach, so Tom taught him to puke in the toilet when he was only a few months old. He does it on a regular basis, but he does not know how to lift the lid, and since I have been keeping the lid closed so Nora doesn't drown herself (yes, she would), or put any more of Harper's Barbies or clothes down the toilet (yes, she has), he has puked on the bathroom floor next to the toilet a few times. Not a big deal, but he is a big dog so it takes quite a few towels to clean it.
But I digress. I'm in the hall investigating the noise when I see Scout come out of the bathroom and puke on the carpet in the hall. The noise was him retching the first time on the bathroom floor. The smell is so overwhelming I run back into the living room to avoid puking on his puke, but I know it will be impossible to keep Nora away from it for more then 30 seconds, and the smell is starting to make its way throughout the rest of our house, so I take a few deep breaths, a drawer-full of towels, and head back into the hall. As soon as I get there I change my mind again and run back into the living room. Seriously, it is bad. Nora is fighting me like crazy trying to get back there, so I find some Febreeze and start spraying like mad and holding my breath while I head back again (Nora on my heels). When I get down on my knees to start the cleaning process, I realize he has thrown up POOP. Yes, you read that right. It's poop puke. He had just played outside for a while before I brought the girls in from the car, so I'm assuming it's some random dog's poop that he found, ate, then ate what looked to be about 2 lbs of grass to get it back up. Apparently the poop alone wasn't enough to make him puke.
I am really trying hard not to puke, but I am pregnant and quite sensitive to smells, so by the time I got to the portion of the puke on the carpet, I threw up on the throw up, which then made me throw up some more. So now I am sitting in my hallway, crying, surrounded by puke and trying to keep Nora away with my foot, and I hear in the living room, "Mommy, I peed." So I tell her to not move, get the poop puke cleaned up, then head out to get Harper cleaned up for the second time in the last hour.
About a half hour later we are eating dinner and I think to myself "Only an hour and a half until the girls go to bed, at least I won't be cleaning up anymore poop, pee or puke," when Harper gets a somewhat shocked look on her face and says, "Mommy, I peed." Again. At least this time Nora is strapped into her booster seat so I'm not trying to keep her away from a pile of puke or a puddle of pee, so I run Harper to the shower, rinse her off again, think there is NO WAY she will pee again in the next hour so I put her in another pair of panties, PJ's, and back to finish dinner. We read stories before bed and head into the bathroom to brush teeth. Harper likes to stand on the toilet seat and lean over the counter, and while standing on the toilet, she peed her pants again. Couldn't she have at least just lifted up the seat???
After the girls were both clean, dry and in bed I decided to organize my closet, so Tom came home to his wife sitting in the closet, surrounded by a huge pile of shopping bags (I save them for a few months then purge), shoes and sweaters everywhere, crying and trying not to think of the poop puke lest I throw up again.
Being a mom is so hard. Not just because you have to constantly clean up every type of bodily fluid imaginable, although that does really suck. It is mentally and physically exhausting and there is never any down time. Even if the kids are asleep or at preschool, you are always "on-call", poised and ready to do whatever is necessary to take care of your children. And yes, I would do anything.
The next day at church, Harper ran up to sing Mother's Day songs with the other Primary children, and louder then any of the other kids I could hear Harper, looking right at me, sing (yell) "MOTHER, I LUB YOU! MOTHER, I DO!", while I'm holding Nora who is laughing, pointing at her sister and waving. I'd clean up poop puke again a million times over, just for that moment.
Posted by Jennette at 12:23 PM 1 comments
Friday, March 5, 2010
Updates and News
Nora - continuing to do great and up to 17lbs. She is a wonderful eater, eating (or at least trying) pretty much anything we give her. Hopefully someday she will be able to sit in a forward facing car seat, haha. She had her first birthday on Feb. 13th, we went to the Children's Museum in Factoria and she absolutely loved it. She is a little copy cat, watching other kids to see what they do, then copying as best she can. She says a few words, mostly "kitty" and "dog", but she also just started saying "all done".
Harper - her colonoscopy in January showed ulcers and inflammation throughout her colon, but so far it doesn't look like it's affecting her small intestine. In other circumstances they would have diagnosed her with colitis, but because of Nora's diagnosis they compared the two girls' tissue slides and the inflammation is almost identical. Both girls now have a diagnosis of Crohn's, although it is so rare and shocking that their doctor (and the doc down in San Francisco) is still somewhat questioning it. But all other blood work and tests seem to point in the same direction. Harper hasn't responded as well to the medication, but I've seen some improvement just this last week, so I'm hopeful.
Last month I got a much needed break and spent a week in Costa Rica with my two sisters. It was beautiful and relaxing and so much fun! The day after I got home I got the shock of my life when I found out I was pregnant! I was shocked and terrified and worried all at the same time. It took a few days, but soon I couldn't help but be excited.
I've had a couple ultra sounds and all looks well. I'm about 10 weeks along and due Oct. 4th - although if I continue with my current pattern, he/she will be born on my sister's birthday, Oct. 3rd. Because I thought I was a little farther along then what I'm actually measuring, it seems like it's going by super slow, which really sucks. The "morning" sickness is really getting old, but I'm hoping it will end at 14 weeks like it did with the last two. I had been working out a lot before I got pregnant, so I've been trying to keep it up (in between the puke), but last night as I was doing sit ups I could feel where my ab muscles are separating (to let my uterus expand) and it was really sick. I got really freaked out and had to stop, haha. Which is weird because it hasn't bothered me with the last two pregnancies, in fact I used to trick Tom into feeling it to freak him out, hahaha.
It's early yet, but I'm predicting it's a boy. With my other two I craved meat, especially cheeseburgers. With Harper I couldn't drive by a McDonald's without getting a quarter pounder and with Nora I was really lucky to be in CA twice and get several In N Out's. With both of them I thought it was a boy because I figured I was eating like a boy. With this one the very thought of a burger literally makes me gag* (except for In N Out, which I will always love no matter what). In fact, any kind of meat makes me sick, I just want veggies. So since I'm eating like a girl, I guess that means it's a boy? Nine more weeks to know for sure.
And along with my exciting news my sister has some of her own. She is getting married! We had planned on going down in May for her grad school graduation, so instead we are now going down for a wedding. She is so happy and in love, I'm ecstatic for her. The best part is that his name is Eric - Eric & Erica, hahaha.
*Seriously, just typing this paragraph was a huge risk. There was lots of dry heaving involved.
Posted by Jennette at 12:47 PM 3 comments
Monday, January 4, 2010
Well it seems I am only updating on Crohn's disease as of late, and unfortunately this post isn't gonna be any different.
Good News:
Nora is doing great!! She has gained 2 lbs and now weighs over 15lbs. Still not on the charts, but getting closer. She has started walking a tiny bit, taking a few steps here and there and seems to love her new skill. Dr. Heiman down in San Francisco confirmed the Crohn's diagnosis, and we learned last month that Nora is the only baby in Washington with the disease. There is one other in CA (the other one that Dr. Pickens helped diagnose), but that's all that we know of on the west coast. I wasn't kidding when I said it was rare.
Not So Good News:
Harper went in for her preliminary blood work and it looks worse then Nora's did. She is anemic and her inflammatory markers are very high. She goes in on Wednesday for a colonoscopy and endoscopy - I know it seems a little extreme to do just based on some iffy blood work, but after what we went through with Nora we aren't messing around. If Harper has Crohn's we need to know now so we can start on treatment right away.
I was able to connect with a woman who used to be in the Orting ward who has a young son (13 now, 7 at diagnosis) with Crohn's, and it was so great to talk to her. She was reassuring, encouraging, non-judgmental (yes, I have been judged for putting my daughter on steroids - people are stupid), and all around awesome. She has always been someone I've looked up to and it was so great to reconnect with her and get some advice.
I promise I will get a non-Crohn's post in here soon. Christmas pics and more are forthcoming.
Posted by Jennette at 12:44 PM 3 comments
Wednesday, December 9, 2009
The Latest
Here is the latest news on Nora:
Three weeks ago Nora started on predisone to calm her immune system and get the inflammation under control. She promptly got a bad cold which she couldn't fight off and became very sick. It was a really rough week for her. Her antibody test came back indeterminate, which definitely doesn't mean she doesn't have Crohn's (anywhere from only 40% to max 70% of IBD patients have the specific antibody pattern), but the doc wanted to run some additional tests just to be sure we weren't dealing with another autoimmune disorder that was affecting her GI tract (all tests were negative). Dr. Pickens also sent her biopsy tissue down to Dr. Heimen in San Francisco who will look over them with his pathologist to make sure nothing got missed. I would also like to mention that they are doing this for FREE. We have wonderful doctors.
Anyway, the week was filled with lots of blood tests, doctor check up's, and stool tests (I am a pro at collecting poop now...if there was a degree in it I'd totally have it - Jennette Worton, Doctor of Poop Shovelling). She lost weight and was all around miserable....however, her blood work was PERFECT!! No anemia, white blood cell count was normal, and all her inflammatory markers were ZERO. The prednisone had done its job splendidly, so we took her off it immediately, and a few days later she got much better (and popped 3 teeth out).
She has now started on sulfasalazine, a topical anti-inflammatory drug that has no immunosupressant effects, which is good and bad. Good that she will be able to somewhat fight off bugs that come her way, but bad in the sense that the drug technically isn't helping the underlying issue of the disease, just helping the symptoms. However, since we don't know a lot about the progression or severity of her disease yet, I think no immunosupressants is a good thing, especially with how well she is doing this week. She is so bubbly and happy, laughing all the time, giving high 5's, saying new words, playing with her sis, chasing the cats. After lots of help from Grandma Lee on Saturday night she is also now taking a bottle, and since yesterday she has even started taking her special formula - yay!! She is definitely on the mend and I couldn't be happier.
Once again, THANK YOU to everyone for all your help, your thoughts, prayers, and encouragement.
Posted by Jennette at 9:49 AM 2 comments
Saturday, November 21, 2009
A Diagnosis
For those of you who already got this email, sorry for the repeat:
This week Nora was diagnosed with Crohn's disease, an autoimmune disease that affects the gastrointestinal tract. It is extremely rare in infants and we owe a lot to our wonderful pediatric GI, Dr. Pickens for being stubborn enough to figure out what was going on with our poor little baby. Yesterday Tom and I met with Dr. Pickens and a nutritionist to talk about treatment options, which unfortunately are limited with Nora being so small and so young. It is very different then treating an adult patient or even an older child. Some doctors (Nora's included) believe that Crohn's starting in infancy is actually a separate pathogenic subgroup of the disease, one that unfortunately is still a big mystery in many ways. But the good thing is that research is being done and doctors are finding out more and more each year.
According to Nora's tests (endoscopy, upper GI and colonoscopy), the disease is, at this point, affecting her esophagus, duodenum and ileum (in the small intestine), and in every part of her colon that they took biopsies in. It is extremely painful for her, and it is making her anemic and deficient in various vitamins and minerals and stunting her growth due to the villi in her small intestine being unable to do its job (absorb nutrients) because of the inflammation. However, even among the painful disease and procedures and tests over the last 6 weeks Nora has for the most part stayed a cheerful, smiley, happy baby. She is a fighter in every sense of the word.
This week Nora started on prednisone, a steroid that will suppress her immune system and calm the inflammation. Because of the severe side effects of steroids Nora can only be on it for 4-8 weeks, at which point she will move on to an immunosuppresant called Imuran, which is one of two drugs that comes in a dose small enough for Nora. It has some scary side effects, but we will be staying up on them with weekly blood tests for the first few months, then every three months after we get her up to the right dose and feel good about how it is effecting her body and working on the disease. For the next few months we will have to be very careful in doing everything we can to make sure Nora doesn't get sick - because her immune system is suppressed she will get sick very easily, and because of her disease any diarrhea or vomiting or fever can be very dangerous for her. We love you all, but if you are sick STAY AWAY!!! :-)
We are so fortunate to live where we do and have two amazing children's hospitals withing 40 miles of our house. Dr. Pickens also used to work with the leading inflammatory bowel disease expert on the west coast (Dr. Heimlen in San Francisco), and he has already consulted on Nora's case. We are also blessed to live among so much family and such wonderful friends who have overwhelmed us with their love and support. Thank you!
Posted by Jennette at 7:12 PM 2 comments
Saturday, November 14, 2009
Today's Update
I know, twice in two days - it's amazing, what can I say.
Just wanted to give a quick update on Nora. She slept relatively well last night and seems to be feeling a lot better today. She had some good laughs with Harper and seemed to be a little more of her feisty, happy self. She does seem rather fatigued and tires easily, that is probably from the anemia. But all in all I feel like I can get back to focusing on more important things like setting my sister up with Nora's doctor.
Posted by Jennette at 5:13 PM 1 comments
Friday, November 13, 2009
Nora
I typically like to keep my blog light and funny. No, my life isn't all rainbows and sunshine, I just like to amuse you all with a hilarious spin on motherhood, work, school and all that goes along with those things. Obviously there is some serious crap involved, but personally I think blogs should be funny so I like to turn that crap into lemonade....er something.
However, most of you know that my 9 month old daughter Nora has been struggling for most of her life with pain that we don't know the cause of, and many have asked for an update this week after several procedures and tests. That being said, this post will probably be a downer. There's your disclaimer.
At Nora's one month check up her doc decided she had acid reflux and put her on Zantac. It seemed to work for a few weeks but she was back to screaming and not eating rather quickly. After a change to Prevacid we thought we had things under control until about 5-6 months old. Nora has never been a great sleeper - she typically wants to be held and even then she really only sleeps for a maximum of 3 hours at a time (if I'm super-duper lucky), but around 5 months she took a turn for the worse and was up most of the night screaming in pain. Most nights I "sleep" sitting up in bed with Nora on my chest, or Tom walks her around. Finally at 7 months after insisting to her doc that there was something else wrong he referred me to the GI clinic at Mary Bridge. We saw Dr. Pickens for the first time a month ago today and at that point Nora was off all growth charts and losing weight. He ran blood work and some other preliminary tests to find her inflammtory markers high, white blood cell count high, and red blood cell count low. Although very rare in infants, Dr. Pickens suspected Crohn's and did an endoscopy and flex sig the next week, which showed villi loss in her small intestine, blood in her stomach, and unhealthy tissue throughout her stomach and small intestine.. Biopsies were negative for eosiniphilic disorder (a white blood cell disorder), celiac (gluten intolerance), positive for inflammation, pointing again to Crohn's.
This week he did an upper GI with small bowel follow through (drink barium contrast and take x-rays ALL DAY while it goes through your system), at which point he was convinced it was Crohn's and even started discussing treatment plans. Wednesday we did a colonoscopy to "confirm", but it looked normal. He sent in biopsies anyway and redid her blood work, which showed her still anemic, and her white blood cell count and inflammatory markers almost doubled.
At this point Crohn's is still an option, but it is becoming more and more unclear. We are waiting for more blood results and biopsy results to take the next step. Meanwhile Nora seems to be getting worse each day. Up until the last week she has had horrible waves of pain and bad nights, but other then that has always been very happy, smiley and easy going. If you make eye contact with her she will give you a beautiful, big open mouthed smile. However this week she is not a happy camper at all. She couldn't eat for most of Tuesday and Wednesday because of the procedures, she became very dehydrated, and her blood work on Wednesday had to be taken from a vein in her scalp after being poked twice in each hand and foot. She normally loves to crawl around, get into things, stand up and cruise, but this week she just wants to be held and doesn't even have the strength to pull herself up anymore. Last night she screamed from 9:00pm until 2:45am. I definitely haven't been in denial - I am the one who has been insisting to her doc all this time that there was something wrong - however, this week has been sobering and depressing to say the least.
At this point I feel like I could honestly care less what her diagnosis is - I just want to know so I can take care of her the way she needs. Thank you to everyone who has been a huge support this last month with helping take care of Harper during all the many doctor's appointments, your words of encouragement and your prayers. I firmly believe that Heavenly Father guides people to our lives to help us through challenges and I have seen that this month more then any time in my life.
Posted by Jennette at 12:58 PM 3 comments
Wednesday, April 15, 2009
Harper Sings
Posted by Jennette at 8:28 PM 3 comments
Monday, April 6, 2009
Women At Work
Sometimes life is full of surprises. I admit that I normally revel in these tiny unexpected moments of bliss, even sometimes when they might not be so blissful. I don't know, I guess there's a reason Tom calls me a Drama Queen. Call me crazy, but I like change - too much of the same thing really bores me.
However, I also do not like it when things don't go my way. I don't think I'm overly selfish, I just like to plan and I like to be in control of my plan, and I really don't like it when I'm not. My plan was to take four months off work after I had Nora - I have so much sick and vacation time saved up that I would have been paid my regular part-time salary for 2 of those months, so Tom and I figured we could go 2 months without. Unfortunately things didn't go as planned. It became glaringly obvious that the temp we hired (who was recommended by our CPA) was NOT working out about 5 days after I gave birth. I'd get 3-4 phone calls a day with him asking me the same questions over and over. It got to the point that it was more stressful babysitting this guy and fixing his mistakes then it would be to just go back to work and do it myself. At first I was extremely frustrated - not only because I didn't want to go back to work yet, but also because I really love my job and I didn't want to end up resenting it. But one of the reasons I love my job so much is because I have the best bosses in the world and they sat down with me and we worked everything out so that I would only have to come in once a week at the most. Tom also had to talk me down a couple times, reassuring me that everything would work out, and that he could stay home on the days I went into my office.
So two weeks ago I woke up at 5:00am - well actually I woke up at 2:00am to feed Nora who then refused to let me put her down, but I handed her off to Tom at 5:00am and got up to get ready to catch the train. It was kinda weird. Like I hadn't taken any time off at all, it was just back to routine as normal. It was even 30 degrees outside, just like my last day of work back in January.
My bag was packed with everything I needed to spend a full day away from my nursing daughter - a breast pump, milk collection bags, sanitary wipes to clean the pump, lots and lots of extra breast pads, and two ice packs to keep the milk cold on the train ride home. By the time I got to my office my boobs were already killing me, but I had so much work to do I had to ignore them for a couple of hours. By now my milk had let down three times and, fearing I would drown in my own milk, I decided to take a break and pump.
Even though I have my own office, I decided to pump in the bathroom since I have a rather large window by my door that looks right out into our reception area. At this point I only had my small one-boob pump (my sister sent me her big one last week, and even though it makes me feel like a cow, I love how efficient it is), so I took my bag into the bathroom and started pumping away. Like I said, I had been up since 2:00, and had only gotten about 2 hours of sleep, so sitting down without anything to do but listen to the (extremely loud) hum of the pump, I promptly feel asleep, right there on the toilet in the last stall of the floor's public restroom. I have no idea how long I was out, but it couldn't have been too long after I drifted off that I fell forward off the toilet and into the stall door in front of me. After I got my pumping back in order someone came into the bathroom and yelled "What is that NOISE??" I wasn't sure if I should just ignore her, or yell back, "IT'S A BREAST PUMP!" I tried to decide what to do quickly, but I was still kind of tired and maybe I hit my head too hard on the door, so I just sat there, pumping away, my mouth hanging open while I tried to decide what to say. Then the woman left without using the facilities, which I thought was kind of weird, but maybe she just had to look in the mirror or something. The other two times I pumped that day someone came in, which I found rather annoying because there's barely anyone on our floor and I almost never run into to anyone in the restroom when I use it. But I had been gone for almost two months, maybe some of the empty offices had been rented.
A week later I ventured back to Seattle with all my pumping paraphernalia. I grabbed the elevator along with 3 other women and while listening to the group's conversation I realized it was going to be a long day. One woman asked the other two women she was with if they had heard the buzzing in the bathroom yet. "No," they said, "It must have just been on that one day that you heard it." "It was weird," the first woman said, "because I know someone was in that stall but she didn't say anything." This is when I realized they were talking about ME. "Well she WAS in the bathroom, maybe she didn't feel like having a conversation." I was just staring at the floor trying to decide if I should pipe up and come clean that it was me when they turned to me and asked if I had heard it. "Umm...I don't know...what did it sound like?" Stupid! Why didn't I just say "Actually I think I know what you're talking about and I think it was my breast pump!" Then the four of us could have a nice laugh and be on with our day. But no. I had to act like I didn't know, and the answer I got to my question was, "Well to be honest, it kind of sounded like a vibrator." Great. Now I definitely couldn't own up to it. But it just got worse. "Oh my gosh," one of the other women said, "what if it was?! What if there's some perv in our building??"
And just like that, I was the Creepy Colman Building perv. The doors opened on my floor and I got off the elevator - halfway down the hall I wondered why I didn't just say "Maybe it was a breast pump." I would have dispelled any horrid rumors and I wouldn't have to admit it was me all along. More people came into the bathroom while I was pumping that day but no one said anything, and I just kept telling myself that I was doing this for Nora. When I got home that evening I opened my bag to put my milk in the freezer only to find that I hadn't closed the bags tight enough and they had spilled out everywhere. Nice. I hadn't done it for Nora, I had done it for nothing.
Thankfully the aforementioned awesome bosses said they would get blinds for my office window so I can pump in there - and no, I most certainly did not tell them it was because I was about to be black listed as the Colman Building Perv.
I hope any men out there reading this really appreciate what working mothers have to go through!
Posted by Jennette at 5:26 PM 8 comments
Wednesday, March 4, 2009
Dots and Spots
When I was growing up I had a very hard time with "dots". Dots were uncomfortable spots on my clothes that would annoy me - like a scratchy tag or the seam on the toe of my sock that would squish into my foot when I put my shoe on (the worst offender). I was notorious for throwing tantrums at the drop of a hat if I had a spot, even stopping in the middle of crossing the street to take my shoe off and fix the spot. For the most part my parents thought it was funny (and have pictures of the tantrums to prove it), but to be honest it really drove me crazy. I even went through a naked phase because the dots bothered me so much. My aunt and cousins in Orem know first hand about this phase - they were babysitting me while my parents were on vacation and I insisted on playing outside....naked. My aunt let me because she figured I'd get embarrassed after a couple minutes and come back in, but nope, I stayed out there all day and had a sun-burned butt to show for it.
As I got older I realized there were lots of other weird OCD things that I have. Some of them I have grown out of or overcome (I can sometimes walk on grates and/or cracks on the sidewalk...sometimes there is no way around it in Seattle), and some of them have actually gotten worse as I've gotten older (uneven blinds will be the death of me), but I always swore that when I had kids I would always take their "dots" seriously, and I would make sure my hubby did, too.
Harper does not have dots...she has "spots". And I swear I did NOT teach her!! About a year ago she started talking about spots, and coincidentally, they were usually on her feet. I am always very careful about how I put on her shoes, and if she says she has a spot I take them off and try again. I have also given Tom strict instructions, and he is very patient and loving about it. Probably because I still talk about how traumatic it was when no one would help me with my dots and just laugh at me.
Anyway, last Sunday was kind of a rough day. Harper has been having a hard time going to sleep at night, which makes her more prone to tantrums during the day. It is odd for me to deal with because she has never been one to throw tantrums or not sleep. I like to think I do a pretty good job of staying patient and helping her work through whatever issues she's having, but Sunday I was exhausted and really couldn't handle it. Tom had left to go to church meetings, but I called him and asked if he could come home and help me. I assumed he was going to just stay home and help out, but he decided to take Harper to church w/ him and give me some time alone at home. I thought that was really sweet of him because 1) Harper LOVES church and perked up as soon as I said she was going to church w/ Daddy, and 2) I really wanted some time alone.
When Tom got home I had Harper almost ready, she just needed to get her shoes on. He was already running late, so I was trying to hurry as fast as I could, but Harper said she had a spot. I tried to fix it a couple of times, but each time I put her shoe on the spot was still there.
And here is how I know I married the best man ever:
Tom picked up Harper and patiently asked her where the spot was. He took off her shoe, examined the tights and asked me if there were any other tights she could wear. Her other pair had dirt all over them, so he took off her tights, got a pair of scissors, and started cutting back the seam as much as he could so the spot wouldn't be so big. By now he was probably going to miss most of his meetings, but he took his time and kept telling Harper he would fix the spot. Finally he got her tights back on, put her shoes on and asked her if it was ok. Harper walked around for a second, nodded, and off to church they went.
And THAT is the proper way to deal with spots and dots.
Posted by Jennette at 3:04 PM 2 comments
Nora Evelyn
Posted by Jennette at 10:49 AM 4 comments
